A Life Well Lived?

Nineteen is young and gorgeous, full of life, teeming with expectations;
It is life as it should be, radiant, crazy, alive, frustrating and impetuous.
Ninety is experienced, wise, a full life lived, content and resigned to time that is left.

Sixteen and seventeen a whole life ahead, brimming with hope and potential;
Grades, relationships, applications, disappointments… intense confused emotions.
While ninety-one snoozes, reminisces, the TV blares loud and the phone isn’t answered.

A teen is wide-eyed, mind open to soak inhale knowledge from books, lectures, opinions; Philosophical discussions during wee hours, curious as to how he will impact his world.
Eighty-seven is where should I live now and who will care for me?

But a shift, a rift, a change, irrevocably setting our life adrift.

A dark shadow falls on the teen, weakening from sixteen to a hundred years an old man.
While the eighty-five year old turns ninety and more, strong and stronger still.

The elder’s possessions are support hose and oxygen and a bra without elastic.
And the teenager has pills and ports, doctor visits and organs that fail.
Parental house then apartment, now a space filled with pictures and fewer clothes.
Would I but welcome his messy room over a house with trappings of the old.

Eighty-nine is tired, finished, waiting to see loved ones on the other side.
Almost twenty has hands reaching towards him unexpectedly and way too early;
When the ones grabbing ought be sexy young flirty with light and love.

A legacy at ninety-two spells out generations spilling to the next, stories of life well lived.
The teenager has few scribbles, chords played, treasures no longer holding his scent.
The grandmother has bequeathed her eye color, her strong will, pieces of her soul.
Yet no generations will follow him, never any children, no girlfriend who loved;
No one will carry his genes, smile, talents, or carry on his wishes hopes and dreams.

There are no clues I can find, the answers to the conundrum of age and aging inadequate. How and why and how can a teenager can crumble and wither before his grandmother. The energy and calm I call upon to care for the person who has already lived when my heart’s full desire is to tend to the other is one of the ironies of my life, a modern Shakespeare’s satire that I wade through with a smile that is false but lipsticked. I don a well-placed mask to cover the part of my life which is a sham, to hide what I really feel and am mortified to admit.

It takes an inhuman amount of energy not to flail at Gd for the unfairness and injustice of it all, but I am shrewd enough to understand that it’s not personal, that my corner of the world is but a slice of the teeming universe I will forever grapple with.

On days like this I look forward to other, better ones. I know I will scrape myself together and mend with tape and clips or chocolate and love. And I add this chapter to what will one day be my opening and closing statements of how a life should be well lived.


Dear God

The new year is the season of formal prayer, connecting us to traditions thousands of years old, and to issues ever-present in our lives. Prayer is communal in its performance, yet deeply personal in nature, which is why I believe that many of us chat with Gd on other occasions, in other venues and languages, and likely more often than we admit.  

It is said that there are no atheists in foxholes: When we feel panicked, desperate or deeply troubled we organically reach out and connect. It is then that we look for something or someone, perhaps to a power higher than ourselves to massage our souls, calm our fears, and gently rock our inner child so that all can be well.

Seven years after Gilad’s exit from our life, I feel like I should be in a better place with Gd and prayer, yet I confess that I still struggle with the how-what-where of an exchange with the Divine. As easily as I can converse with Gd in my car, in my home, and go back and forth with Him in my head, the structure and practice of formal prayer which has been in place for generations frustrates and distances me year after year. It’s as if I am floating in a different realm, disconnected from the emotions elicited by the written word, watching others chant the tefillot with meaning, shaking with a cadence that is downright spiritual yet foreign. I find myself teetering on the threshold without entering the holy place; I see the crossroads but am holding back. When Gilad was taken from us, I think my disbelief and anger at Gd permitted my fall from grace, from a place where I once felt comfortable uttering the words of my ancestors, confident they were heard, faithful that they were valuable to Him. And now, while my anger has abated, I am not sure I have forgiven Gd enough to fully believe in prayer as I once did.

So here is my own prayer to Gd this Erev Yom Kippur:

Dear God –

I often say you don’t like me, but I’m afraid it may be the reverse. I am enormously jealous that you now have my son and I no longer do. Moreover, You understand the world you created, with its complexities and faults and joys and pain, and I am often befuddled, left wondering and questioning. I see snippets of the world to come in the cloud formations and reflecting lakes and sun shining upon my grandchildren’s faces. But when the earth quakes and the rains flood, when the the diagnoses come and kidnap the people we love, when the sorrows of life outweigh what is good and right, I question more and more.

I no longer thrash but I am still disappointed. While I have learned to be grateful and have promised myself to be more joyful, I ponder the inequities of life, of wealth, of goodness, of justice and the seeming random nature of life which could very well be a meticulously planned game of chess. Why is it that we continue to search for answers that are undoubtedly out of our grasp and may simply be an exercise of our minds?

After the Garden of Eden You set us up in a human world with challenges we cannot always overcome; life unfair in its construct. We are mere mortals to you, Gd, the entity who is, was, and will always be.  I feel thwarted by the corporeal limitations we carry, at the demands placed on us by each other, guided by rules You established and handed down by Moses. We are flawed humans endeavoring to understand a complex world, living within the constraints of time and space and logic, obeying, listening, staying within the lines of our morals and ethics and laws. We straddle the realm between heaven and the unknown, and I fear we may be but mice in a maze trying to find the right path, only to repeat it over and over again until we get it right.

We prance inside this world but sometimes I wonder if we are really here at all, as the meaning of life eludes us and we chase it until we are so tired that we take our last breath, eager for you to welcome us with the clues, the answers, the solution to the game of life. As we wait our turn to rejoin those we loved and lost, we have reached yet another year. We can only hope that we are not at the same place we were last year at this time, as we begin the year with open hearts, clad in purity, in white. We face another Yom Kippur shedding our sins, prayerfully asking and begging, ready to let go of quirks and habits and flaws, wishing for something more, better, and especially an understanding of what our lives here on earth might be all about.

Is it about how much we accumulate on this earth? Or how large a footprint or legacy we leave behind? Could it be about how we treat each other or is it more about how we honor You? Does the meaning of life speak to what we accomplish together or the holy grail we individually seek? Is saying every word in the siddur what is important, or can pouring out one’s heart in on a park bench under a tree or sharing words on blog hit the mark equally well?

With the prayer book on my lap, or finding myself absent from the synagogue altogether, I am dreadfully afraid there are no answers, and maybe that is why I hesitate to communicate with You, to connect with words that are not mine, with You weighing my deeds and sins when I want to judge You for what You have taken from me. I contend that I am unable to emerge each day with grace and contentment, to praise You for what I have rather than for what I don’t, but perhaps I am simply – or not yet – willing to bridge the gap and bring you back into my life as fully as I should.

Prayer contains echoes of the past and hope for the future, and I hope that this Yom Kippur I can find the strength to be mindful and present in the synagogue, to find solace, comfort, and peace in the words of Your prayers until they become mine, too.

Balancing Act

posted on Blogs Times of Israel August 1, 2017 Tisha B’Av

I spend my days seeking balance in life: creating joyful moments to offset challenges I face, practicing righteousness to outweigh injustice, finding the calm to counter the frenzy. I surround myself with reasonable, good-hearted people, and I attend to the chaos in but small doses. The balancing act we call life relies on our ability to blend the ideal measure of what is good and bad in this world and to emerge as  human beings who possess virtue with kindness, integrity with honor, and morality with self-worth. Since we lost Gilad almost 7 years ago, striking the balance that’s comfortable for me means gathering a fertile measure of happiness and filtering the gloom.

Judaism itself has checks and balances, the Torah acting as our guide to life and relationships, equity in the community, fairness in our actions. Religion influences and teaches us, guides us to do what is right and just in every action and movement each day and with anyone we encounter.

Yet, there are paradoxes at every turn, colored black and white with few shades of grey in between. One moment it is permissible to work, plow a field, cook, use electronics, drive, and turn on lights; another moment those activities are taboo on the Sabbath. One week in the life of a woman she is accessible to her husband in loving ways; other weeks she is in seclusion from that intimate relationship.

Moreover, there are chunks of time during the year when joy is mandated and encouraged, akin to a performing a good deed. The flip side of the calendar are the weeks when weddings, vacations and business transactions are avoided, as it is not a time for happiness. Rather, that is the time we commemorate tragic events that befell our nation. We enter a sad and heavy-hearted realm, and are low of spirit. New clothing, music, and parties are discouraged, often forbidden, and life chugs along on a lower scale of the register.

Most people, I believe, are able to navigate the vacillating nature of our days, the back and forth of happy and sad and then happy again, and claim to be more resilient as a result. As young children we learned to master the natural and unpredictable ebb and flow of life, where experiences deeply affected our emotions. But a loving hand on our backs assured us that all would be well, and that a treat or something special or fun was just around the bend, maybe not right now, but perhaps soon, even tomorrow.

I am too seasoned now to expect a hand on my back to reassure me that everything will be ok. In addition to the loss of a son, aging parents who now need us present thorny, myriad challenges which prod and push incessantly into everyday life. It takes much circumventing and mental effort to keep the balance skewed towards what feels good and right.

So when I find myself in the midst of a mandated sad, mournful period of time, I cannot usually tap into that directive. Even years after my son’s passing, part of me is sad all the time, and one of my coping mechanisms is to withdraw into the recesses of my mind and daydream myself onto a beach or into a relaxing game in order to escape reality. It is a calculated way of spacing out and ignoring what may be taking place around me. Whether it is the period of time between Pesach and Shavuot or the 3 weeks between Shiv’ah Asar B’Tammuz and Tisha B’Av, I am not as present as others may be. I simply cannot afford to relinquish my emotions to sadness, or I may just inadvertently drown in the fray.

I few years ago, in a piece entitled  “Not Just One Mournful Day,” I spoke of the challenges of Tisha B’Av: ”If my heart carries sorrow every day, am I required to mourn beyond that? How do I add a layer of communal loss onto the burden that already weighs me down, to grief that is emotionally deafening on more than one mournful day? Haven’t I had enough?”

Many people fuss over the 3 weeks and time of the omer, and are inconvenienced by the fast days in the summer. Others admirably and successfully tap into national days of mourning and commemorate somber times appropriately. But for me these sad periods in our history and practice are a tenacious reminder that I struggle to strike the right balance each and every day. If I freely allow Tisha B’Av into my psyche, I wonder what I may discover. I cannot admit what sitting on the floor and talking in mournful tones reminds me of.  And while others will return to their lives unscathed after the prescribed period of fasting and mourning, it is not as easy for me to return to my carefully constructed life if I let down the guardrails of my heart and allow entry to more sadness than I may be able to accommodate.



Seven Years A Life

Time continues to confound us, moving both slowly and rushing past at a speed we cannot quite register. Seven years is a lifetime for our granddaughter; seven days is a lifetime of creation. The days in a week number 7, as do the mourning time of shiva and diametrically, seven are the blessings of new life at a wedding. Some of our holidays span 7 days, and we count seven ancestral patriarchs and matriarchs.

Is there magic or a mystical quality to the number seven? We encircle things 7 times: the walls of Jerico fell after 7 miltary passes, a bride moves around her spouse under the chuppah to signify their own emotional space. We track 7 weeks between the spring holidays of Passover and Shavuot, allow the ground in Israel to lay fallow in its 7th year, and organic species of  Israel – wheat, barley, grape, fig, pomegranates, olive (oil), date (honey) – total seven, too.

Other numbers represent good luck, completion, protection, or unity, and while 7 may be powerful in its own context, what does it mean? Clearly seven signifies a cycle of things – a week gone by and starting anew, a holiday appearing again on the calendar, a period of time to experience joy or grief or agricultural practice.

So where does that leave my family as we approach the 7th yahrtzeit of Gilad’s passing on August 26/16 Elul? Is Gd, in His infinite wisdom, sending me a message at year seven?

My mind and spirit consider Shabbat, the 7th day of rest we enact every single week. All week long there’s a driving force propeling us forward, translating our passions into productivity. We need to accomplish and gloat about how busy we are:  we rush to school or work, panic to meet deadlines, set our alarms to go here there everywhere, and squeeze in time to exercise and run errands. Yet, at the end of 6 days, we are right back where we started –  with a full inbox, the to-do list growing even as we check things off. Is our life a series of frenzied sprints or where we are mindful of the present and notice that there are roses to smell?

Each Shabbat we stop and breathe and think and love and remember. We go back to Biblical times and about-face from computers and smart phones and televisions. We don’t drive to the office or pick up a little something at the store or run just a tiny errand that will take only 10 minutes. And on the seventh day you shall rest. Shabbat is the only time all week I sit on my living room couch and read; it’s when I invite friends over to connect and lounge over food and wine. The seventh day of the week is when we can have a love affair with our lives – to relish being with each other, to breathe deeply, and to truly be in the moment in a way that escapes us the other 6 days of the week.

No matter how sick Gilad was, he embraced Shabbat. He showered and changed his clothes, even if he donned pjs or sweats and T-shirts all other days. I remember him coming downstairs, all ready for Shabbat but no longer going to shul, and laying down on the couch to rest. The living room couch was our Shabbat space, so even these simple actions were different and holy. Gilad sat at the table with us for as many weeks as he was able, even if he needed a comfier chair, even if he was not really eating. One of our most powerful memories is of Gilad singing at the Friday nite table – and then later us singing at his bedside – with his eyes closed and voice clear, as true as prayer can get. These images of Gilad and Shabbat resonate deeply in my heart. He may have had his issues with Gd, as he wasn’t being allowed to live his life as an adult on his own terms. And although I was not privvy to all that Gilad practiced or chose not to, I was witness to his keeping Shabbat close to his heart until his last days on earth.

At year seven I persist in my struggle to make sense of it all, and continue to challenge Gd with unanswerable questions. But in the spirit of the number 7 and our beautiful, charming son, who should-have-been could-have-been a fabulously successful and gorgeous adult, I too am intensely keeping Shabbat…and remembering Gilad every day each week as we count seven over and over again.



A Year in My Life

Time fleeting in mind, fingers through sand
January turns to March now spring again
Intent to pen in hand, more days are gone
A year has had its way with us

Children grown, it’s all a blur
Babies to toddlers, grade middle high
College courses, grads now employed 
Tuition no more, it’s grandchild toys

My kids in their 20s 30s, best I’ve ever done
And my loves who are 7 and 5 and now almost 2
Named after our boy who was once just as cute
So it’s games balls and stories, lego and crafts
Belly laughs and giggles, pretend soup and cake
Brings me to life the second time around
Frazzled before, now soaking it in

Generations cycle, the old and young
Mothers who need us, stable aging or not
Sweetly ask how we are & how’re the kids
Smile upbeat to questions that loop
And how are you and what is new?

Care with the love they instilled us within
And patience and calm and love, did I say?
Allow independence and freedom to be
With their thoughts and their ways
And the things they hold dear

Pray we nurture them down the road
Half as well as they did us
They encouraged and nourished 
And loved us so well

Takes a toll in and out, up and down
To my grounded but thinly worn self
Birthdays farewells and we cycle on
Fresh loss turns the corner, a new one appears

Last year was OR/ER for tonsils and heart
Emotions unleashed once more and again
This time an uncle forever he sleeps
And a miracle truck, the hand of our Gd
Celebrations of life, anniversaries of death

Rivalries aflame, ignited anew
Struggles at work, things rip at my heart
Revisit myself as a young timid teen
Slog back to present, but wiser again

Time flip flops back and forth
And marches on to whatever beat
Those who passed still are gone
The years unclear it’s all the same
We move forward and on and through
And hold on tight and sometimes slip
We promise to do well and act and be
And sometimes don’t but often do

We forgive but don’t always forget
We hurt and scar, love and spar
Hope and hope for the good to be best
Perhaps it maybe can outweigh the rest

To love with our hands and inside our hearts
Open our souls more than our lips
To kiss and hug more than we shout
And be real and honest and good as we should

Treat each other with true deep kindness 
As the years pass with tears joy and love
Remember the ones who stood here before us
And honor the ones who will take our reins 

And another year has had its way with us
While a new one is already on the way


Lecture by Rabbi Weinreb – The Path of a Mensch: Faith & Ethics

Rabbi Weinreb lecture_Gilad

Lecture delivered by Rabbi Tzvi Hirsch Weinreb in memory of Gilad Schwartz – November 13, 2016



Foreign Language

My vision of the fall holidays is the warmth of family gathering as the weather chills, menu planning and multiple grocery store runs in preparation for mouthwatering family meals, and an attempt to buy everyone a new outfit, sweater, or tie. And, of course, there is the anticipation of the year to come, the traditions which we uphold as we usher in a new cycle, hoping for sweet things, praying to be inscribed in the proverbial Book of Life.

Critical elements of the new year are prayer, charity, repentance, and looking towards the future with hope, and the promise to be better and do more.  But prayer is where the uncertainty of life and my unresolved anger with Gd converge in an emotional impasse. During the course of the year I manage to sidestep the synagogue and avoid communal prayer, but this is the time of year – starting a mere 2 weeks after Gilad’s yahrtzeit –  that I feel trapped and ambushed, called possibly by Gd himself to lay claim for my life. We are summoned to advocate for ourselves, to present defense against our sins, and beg for benevolence for ourselves, our family.

Hello Gd, it’s me: Are You not aware that I have been less than pleased with Your response to my requests? Am I the only one who recognizes that our relationship has been a contentious one?

Perhaps sacrificing an animal would be easier. I imagine the logistics: procuring an animal, prepping the accoutrements, planning the transportation to Jerusalem. It might be cumbersome and gruesome, but not emotional. Pack the ram into the back of the van, drive through traffic to the holy site, meet the coordinating Kohen, pay my dues and journey home feeling lighter, better.

As my emotions rise to the surface, I become busier still in the kitchen or run off to errands, anything to disentangle myself from the ram’s horn urging me to come pray, to atone, to join my community in the synagogue to chant and sing and recite and pray. This year’s plan was to stay home with the grandchildren so my daughter and her husband would be free of child-care responsibilities; other years I rode on the coattails of “I still cannot bear to be present, to ask Gd for things I know He won’t offer me.” It’s six years now, and I still feel uncomfortable in my own shul and spend limited time engaging in tefillah b’tzibur. I was that person once, but that was a lifetime ago.

My excuse to be home and avoid the inevitable only lasted so long, and after words from my usually patient husband, I directed myself to the synagogue on the 2nd day of Rosh Hashana facing the words I’ve seen my entire life, the liturgical poetry on the page waiting to be uttered.Just as when I was a child, it felt like the hours would only pass if we turned the pages, sang the songs, whispered the words privately or collectively. My body was there, but my mind was thinking only of my own private akeida, the sacrifice of my child to the Almighty. Was my mere presence within a holy community a form of religious observance, of connection to Gd?  If I just hummed or listened to others reciting, would that be considered prayer? And why couldn’t I tap into the version of myself that claimed was no longer angry at Gd?

I did not – still do not – feel that those prescribed words speak to me, to my world or my life. These are foreign idioms, contrived and cobbled together by my ancestors from a long-ago age, an unrelatable time. The connection is fragile at best, held together by threads, worn and aged, and speak a language not my own.  Or – are they a touchstone to the part of my heart that is still angry, still weeping?

Don’t get me wrong: I still speak with Gd, often in my car or in the privacy of my home or here or there, but it that enough?

My conversations with Gd, weekly and often daily, don’t take place in the synagogue and my choice of words is far beyond a combination of consonants or sounds or vowels. Illness and the fear of a life cut short transform the very nature of prayer, stripping down expressions to raw emotions which mere words cannot convey. I am a mother who choked her own name in a prayer for the sick: heal my son, mother of me. I begged and pleaded, offered myself in his stead. I prayed passionately and deeply, and communities stood behind and alongside me. Deeds were done, and kindnesses exchanged to benefit my son. I stood at that altar with my husband and prayed the true language of prayer, not one of words, but of aching hearts leaking blood, sweat, and tears.

So how, how can I transition from that experience to finding myself in a room with others who are chanting, singing, swaying, praying for reasons I cannot begin to fathom? Why is one paragraph chanted in a serious tone, transitioning the next minute to a hopeful and jubilant tune? How can I believe that mere prayer or good deeds can ameliorate devastating news, prosperity issues, health dilemmas? How can I be part of an experience that I have moved beyond?

I struggle and I thrash; I remain perplexed and in awe of those who can simply and fully believe in a simple algorithm of believe, pray, live. The printed words are just that: words written and uttered by others, but this mother’s heart knows a form of prayer no one should ever know, and I simply cannot go back to that reader, that primer of prayer I have graduated from.

I live and I believe, and perhaps my life is my prayer. A series of milestones laced with occasions, a dropped stitch here and there, formed the sometimes mismatched fabric of my life. But – but – I purposefully and honestly allow Gd to be present in my life, now and always. Perhaps my acceptance and recognition of Gd can act as a tribute that may wield more power than any language of prayer. My prayer is my life, and that is what I can offer.

I have stood at an altar, and I have sacrificed my son. I speak another language with Gd and I pray it is not too foreign.


Still and Always

He is still ours
Still remembered
Loved always
And he matters still.

I allow myself to grieve him still
To ache and still miss him.

He still died
Simply and still gone
He is forever missed
He is still a beloved friend, son, uncle, brother, grandson, cousin.

He can no longer be
plan a future
pursue dreams
sing & jam
discuss philosophy
sit with us
compose music
see the world
hope for long life
have a wife
build a legacy
be present
be himself.

And for that we still
Grieve still.

We remember…what we still can
Talk and tell his stories and ours
His amusing antics
We comfort each other
Honor and keep his memory alive
And we still allow ourselves that.

We are forever changed…still and always
He took shards of our souls with him
And he left bits and pieces that we carry still
But we’re here and he’s still gone every day.

So we love and honor and speak of him still
Still and always.




Radio Silence

I have been silent but inside emotions roil, voices resound. The pain has quieted but it is present still.

At times I still feel small and shy. As a child I considered myself different, my own unique being whom no one ever really understood. Even as an adult I carry within me that uncertain, inner child. I pull back, emotions tucked neatly in, and breathe deeply.  The drama of family weaves an everlasting challenge, and we are often poised to play roles we didn’t choose. So we dance an awkward show of life.

Do we ever reach an age where we have leverage over our thoughts and actions? 

Why is my self-doubt not tamed by now?

What measure of self-assuredness is enough to upend the questions we struggle with, the issues we thrash against?

When did my sensibilities and deep-seated beliefs flee?

August is the earthquake of my life, when my inner strength is as shaken as the ground I stand on every single August 26. And this year December and January brought tremors of their own, creating new chinks and crevices in my terra firma-turned-quicksand that I am still painstakingly trying to patch and repair with my hands and heart, whether down on my knees or standing still.  

With the end of summer comes the flood of emotion, unabated as if it’s fresh and raw. Yet this time it is not without warning; we fully expect and brace for it. But each year we are taken aback – surprised almost – that we failed to prepare for the pain that it brings.  

I am blessed with my remaining children and their families, for my mother’s unending love, my family of birth, and my friends who truly understand and support me. I have learned to be more than grateful for the good moments, the kind people I choose to be with. I carry with me the love from years past, and especially from a boy who made me promise I’d be alright, and from last weekend in the Berkshires with those I love the most in the world. I cry tears for the life Gilad was unable to finish, for the pain he endured, and for the memories that I am afraid will vanish from our minds.

So I hold tight to my gratitude, to the silver-lining-grandchildren who offer sunshine, to the fortitude I inherited from my survivor father. I promise that I will rock and nurture my inner self, and encourage that uncertain child so that I can dismiss my skewed perspective and confusion and simply be a sad mother deeply grieving her son in August.

If my heart is still full of Gilad, it cannot be silenced. Our boy left us with his thoughts and passion and talents and his voice, and we cannot quiet the part of him that continues to reside within each of us.



The Invisibility Cloak

There is something magical and wonderous about being invisible, tiptoeing undetected and taking a peek into other people’s lives, homes, dialogues.  Magic elicits curiosity and mystery; our jaws drop as we witness mastery of the unknown. But there is only pain, certainly nothing enchanting or powerful, about feeling invisible.

I believe myself to be grounded, rooted in reality, but what swirls around me is confounding and muddled. I have buried my son Gilad not once, but twice; in terra firma over 1900 days ago, and in my heart only recently. There is simply no room for everything that has taken up residence in my head and heart these past weeks, and Gilad has sadly disappeared from view.

Not everyone who exits this earth has the opportunity to leave a legacy behind, whether in the form of children, with a smile or beloved temperament infused into DNA, or manifest in accomplishments, published works, or recognized success. For some of us, all that is left are our memories, and when that is relegated to the back recess of our minds and conversations, our adored, beloved person dies again.  Moreover, as the people who are carrying the precious memories are – sometimes unknowingly – swept aside, they, too, become invisible, wearing not a diaphanous, magical cloth but a heavy, oppressive cloak.

I typically wear my badge of honor in memory of Gilad as proudly as I would a gold star, in my soul and on my sleeve. I bear what I remember of his essence so that his spirit remains with us in this world. To be without that is to feel bereft; to neglect a child – my own flesh and blood – from my past life is unimaginable. Gilad was not merely an ingredient of my life, he was his own force, singular and exceptional, sweet and caring and forever charming. He had the ability to put others at ease with his smile and his strong yet gentle disposition. Gilad was on the cusp of adulthood, with hopes and dreams, and in pursuit of life’s truths through rational thoughts and intellectual discourse. He had the potential to be an entrepreneurial businessman or a provocative philosopher or a ground-breaking engineer. He would have been a loving father and caring husband, too, and he inspired us with his life and his courageous and tragic battle with disease.  And if I do not continue to talk about and shoulder what remains of him within us, not only is the echo of his footprint gone, but my soul shrivels as well.

My life, at the moment, is crowded with others, and there are days where there is no room for me, speaking again to my sense of feeling invisible, unremarkable. I faintly disappear into the background when all the while I am fiercely keeping all the fires burning, the appointments kept, the work tended to, the food cooked, the laundry done, the phone calls to check on others, the needs met. I am in the throes of turmoil from many sides.

Eddie is recuperating well after his heart attack 5 weeks ago, and I feel blessed that he emerged relatively unscathed. I took back many of his household tasks and errands, and am only now gingerly and carefully returning them to him. I worry about him, but not incessantly, and I recognize that, although it seems we just stood under the chuppah and moved to our first apartment and started our family, we are now in our final chapter together.

Together we care for his declining mother, who is unaware of all that has transpired in the past month. And while I am grateful for her easy, sweet disposition, the unshared burden of meticulously looking out for both her present wants and needs, as well as her future, weighs heavily on us. My mother remains fiercely independent, yet needs some love and attention these days in the face of the overwhelming and unfair loss of yet another grandson. To say that I look out for her would be an understatement, and although she manages her daily necessities and weekly plans, I endeavor to help her with this and that, and hope to be her future support system.

Moreover, I am beyond sad that Judah is gone, and I am reeling from both a secondary tier and from a deep knowledge of grief and loss. My heart continues to break for my sister and her husband and children, even though there is absolutely nothing I can do for them. In fact, my mere existence is a reminder of something they cannot bear to look at; it’s innately and elementally and vastly different, yet at the end of the day it may actually be the same thing. But commonality only goes so far, and sometimes it causes more pain than comfort. So I reach for the cloak once more, and hide myself in plain sight.

My life is too much some days, but it’s mine so I have no choice. I am functioning in an overwhelming situation, and somehow, Gilad’s loss is buried underneath it all. Would be that I could crawl under the magical fabric of invisibility, clutch Gilad to my heart, and sleep the unconscious sleep until it all gets better.